DATA DATA DATA: And here comes the evidence.
Presented as part of the RX Hope Virtual Series, FamilieSCN2A Foundation. Sept 22, 2021

What does better look like? Identifying and measuring meaningful outcomes for people with Lennox-Gastaut Syndrome.
Lennox-Gastaut Foundation Meeting of the Minds, online scientific meeting Sept 13-14, 2021.

Prevalence, impact and possible causes of gastrointestinal symptoms in patients with Dravet syndrome and encephalopathies linked to KCNB1 and KCNQ2.
Fundación Síndrome de Dravet, July 19, 2021. [Blog]

Parent Drivers of and Partners in Rare Disease Research: Developmental Epilepsies and Encephalopathies
Rare Disease Day. Orphan Disease Center & Coriell Program, March 2, 2021. [Presentation begins at 33:45]

Improving treatment of developmental epilepsies and encephalopathies: Current barriers, and lessons from the Children’s Oncology Successes, Stewart Goldman & Anne Berg
DEE-P Connections Webinar Oct 2, 2020

DATA-DATA-DATA, But where is the evidence? A (very) brief introduction to research, data collection, data analysis, and what we need to be Clinical Trial Ready, Stewart Goldman & Anne Berg
Presented as part of the RX Hope Virtual Series, FamilieSCN2A Foundation. October 2, 2020.

Rescue Medications for Children with DEE, Anne T Berg, PhD, and Elaine Wirrell, MD
DEE-P Connections Webinar June 12, 2020

What is LGS? Parent Driven Data from the Natural History Project, Anne T Berg, PhD
LGS Webinar May 26, 2020
(Link to presentation slides)

The many facets of Dravet Syndrome: Parent Driven Research from the Natural History Project and Ability Study, Anne T. Berg, PhD
May 28, 2020

Update on KCNQ2 studies in the channelopathy-associated epilepsy research center without walls (Al George & Anne Berg).
September 5, 2019

Early life epilepsies Natural History Platform. KCNB1 Seminar, Anne T Berg, PhD
KCNB1 Seminar, Jan 25, 2017